Share your experience of Thyroid Eye Disease

We would like to speak with adults aged 18 and over who:

• Have a diagnosis of TED.
• Live in the UK.

 We will schedule a convenient time to speak with you about your experiences. If you agree to take part and are selected for interview, we will ask you to complete an online consent form before the call. This will include consent to record the interview. The interview will take approximately 1 hour and will take place over Microsoft Teams.

If at any time you do not want to answer a question, you do not have to. You are encouraged to discuss as much as you want but do not need to share anything that makes you uncomfortable.

You will be provided with a £40 Amazon or Love2Shop voucher after the interview to thank you for your time.

No, participation in this research is entirely voluntary. It is up to you whether you take part. You can decide not to take part or withdraw at any time – even after the interview has started, without giving a reason.

If you decide not to take part, this will not affect the care you receive in any way. Your care providers will not know who has taken part. 

We will use the information from your interview to help develop a survey about the experiences of Thyroid Eye Disease (TED).

• The feedback you provide will be looked at in full by the researchers at Picker analysing the data. Anonymised survey responses will be shared with Amgen Limited.

• What you say will be kept entirely confidential. No identifying information (such as names) will be shared with anyone who provides your care and treatment.

• No identifying information will be routinely shared with Amgen. Identifiable information will only be shared if you disclose information relating to the safety or quality of Amgen’s therapeutic product(s) or medical device(s) and you have given consent for this.[1]

• Picker will only ever report your views anonymously, therefore any quotes used in outputs will be non-attributable, meaning no one can link your comments to you.

• Nothing you say will affect your healthcare or rights to healthcare in any way. 

• Picker will use your personal data and responses solely for the purposes of this research. 

• Your personal information will not be shared with anyone unless required by law, where there is a clear overriding public interest, or if something you say indicates that you or anyone else is at risk of immediate harm.

• All your personal data used and collected for this survey will be stored and processed in the United Kingdom.

Picker complies with the UK General Data Protection Regulation (UK GDPR), the Data Protection Act 2018 and the Market Research Society’s (MRS) Code of Conduct by maintaining certifications from the International Standardisation of Organisations. Any sensitive or confidential material is stored securely in line with our data protection policy.

Your personal details (name and contact information) will be kept securely until the interviews have been carried out. Then, they will be securely destroyed. If you take part in an interview, the recording will be securely stored and securely destroyed at the end of the project.

[1] Adverse events and product quality issues: During the course of this study, you may disclose information having to do with the safety or quality of Amgen’s therapeutic product(s) or medical device(s). Under certain circumstances, there are regulatory and legal obligations to report certain types of safety or quality information to regulatory agencies (e.g., U.S. Food and Drug Administration, European Medicines Agency). As a result, you should be aware that Picker may be required by law to report safety and quality information reported by you to Amgen and/or Amgen’s authorized agent, business partners or collaborators. In such cases, Amgen and/or Amgen’s authorized agent may need to contact you for further information necessary to fulfil Amgen’s regulatory and legal reporting obligations. Your contact details would only be shared with Amgen after you consent.